Monday, August 20, 2012

Ode to the Watermelon

"Taste and see that the Lord is good!"  Psalm 34:8


Short Post....I promise!


My type of cancer combined with the medication has resulted in some major dietary issues.  Don't worry, I will not go into detail.  Anyway, because of this, I have not been able to eat fruit or most vegetables for about two years.  Weird diet, huh?

This has been quite an adjustment for me.  I love fresh fruit and vegetables!  I enjoyed visiting the farmer's market and loading up the back of my car.  The bright colors and scent of all that yummy goodness would make me almost giddy.  I've been so moved by this sight that I have, on occasion, piled it all on the kitchen table and taken pictures!

My love for food may seem a little extreme, but absence does make the heart grow fonder, don't you know.  It is this fondness that moved me to request watermelon on Steve's latest trip to the store.  Because he loves me and wants to make me happy, he filled my request.  Also, because he loves me and didn't want me to drown in watermelon juice, he just bought a container of watermelon chunks instead of an entire watermelon...smart man.

I sat out on my deck, feeling the cool breeze, listening to the birds sing and ate my watermelon.  I'm telling you, it was a beautiful moment.  Psalm 34:8 came to mind immediately.

Well, just wanted to share that thought with you this evening.  I hope your week is filled with God's bountiful blessings!

AmyLou

  

Friday, August 10, 2012

Rash Rants!

I am ecstatic, well maybe just really, really happy that I am able to sit on my deck this morning.  This is just about my favorite place in the world, but the heat and humidity has kept me inside a lot this summer.  It is so quiet during the day - I think most people around here have jobs, so me and Gracie have the neighborhood to ourselves.  We have many birds that visit in our backyard.  I'm not as familiar with them as I have been in past summers, but I do have a favorite.  I think it is a yellow chickadee...I know it's yellow, it's the chickadee part I'm not sure of.  It's so little and bright and happy!  I know it's happy because how in the world could you be that color of yellow and not be happy!

I've been on my new drug regimen for about a month now.  This combo, like the last three or so, is not intended to kill the cancer and cure me.  It's meant to slow the growth of the tumors and keep them at bay as long as possible.  Each drug comes with it's own side effects.  This one is, by far, the weirdest yet.

The drug is Erbitux and it's most common side effect is an "acne-like" rash.  When I heard that bit a fun news my vanity kicked in!  I'm 46 years old and my friends are going to start calling me zit face!  It took less than 48 hours after my treatment for the rash to start in.  It's not pleasant, but some of it is funny to me (I've learned that humor is part of my coping mechanism).

*when the rash first started it felt like braille on my face!  I would have loved for a blind person to run their fingers along my forehead and see what it said!

*I've thought about wearing a surgical mask when in public.  It worked for Michael Jackson.
I will go ahead and answer all the questions people ask me when they see it.

1.  Yes, it itches.
2.  Yes, it is painful
3.  No, I'm not contagious
4.  No, it will not go away until I stop taking the medicine.

Of course the rash on my face is the most noticeable, because I'm modest and not on the Olympic beach volleyball team.  But it does run from my waist up - excluding arms, but including my scalp and  inside my ears!!

One more side effect of Erbitux before I sign off.  "abnormal hair growth".  I had to read that one a couple of times, but that is all it said!  I don't know if it meant you would have hair growth in abnormal places or if your hair would grow at an abnormal pace.  My eyelashes are getting longer, so I'm praying it is the latter.


Gracie and I will sign off for now.  We are getting sleepy, must be time for our mid-morning nap.

Thank you all for your kind words after I shared my blog at GFBC.  Our God is an awesome God and when we speak of Him it never returns void!


AmyLou

Friday, July 20, 2012

Sweet Sleep

"You know when I sit and when I rise; you perceive my thoughts from afar."  Psalm 139:2


I admit it.  I love to sleep.  I believe that a nap can cure just about any illness or help you thwart any domestic dispute.  I fall asleep in the car even if we are just going to the mall.  I've even fallen asleep at a NASCAR race!  Now that takes talent!

The only time I cannot sleep is the night after I receive a chemo treatment.  I feel sick and would love to sleep to avoid the feeling, but sleep eludes me.  This past Monday was no exception.  The day of treatment is usually the worst time for headaches, nausea, etc.  Thankfully, I have medicine to relieve all the symptoms except insomnia.

Before bed on Monday night I took (2) pills for headache, (2) for blood pressure, (1) for nausea, (1) "happy" pill and (1) sleeping pill.  Get a load of this:  EACH of these pills have a label that reads "may cause drowsiness".  You would think with seven pills that may cause drowsiness that I would be able to slip off into a peaceful doze.  I think I need a prescription with a label that says "will knock you into next week!"

The drugs help with the illness, but they do not get me to sleep.  So I resorted to the remedies I learned as a child.  I took a census of sheep until my pasture was full and the fence was bulging.  No sleep.  I counted how many times Steve snored, but then he rolled over and left me hanging on 37.  I started counting my blessings "naming them one by one", but it started stressing me because I didn't want to forget any of them. I use to try to quote scripture verses, but if I couldn't remember I would go crazy until I got up and looked up the scripture.  I think I finally fell asleep thinking of different craft projects I would like to make.

Those sleepless nights seem to go on forever.  But they are not as bad as they once were.  At the beginning of my cancer journey those sleepless night were filled with fears, tears and worry.  I rarely experience the fear, tears and worry now.  I know that God is with me and my family every step of the way.  We rely on His strength and His mercy and that give me the peace I need for each day.


Peace to you!

AmyLou

Friday, July 13, 2012

Feeling a Little Crafty

I really like arts and crafts.  I can spend hours looking at the DIY section of Pinterest.  I have walked miles in Hobby Lobby looking at ribbon, flowers, fabric, woodworking kits (and I don't even wood work).  As I see it, there are two types of crafty people.  Those that are blessed with the imagination and skills to make their crafty dreams a reality and then there are the people like me.  I refer to people like me as the "cursed crafters".  In my mind I can see myself weaving rugs, stenciling artwork on all my lamps, painting murals, sewing curtains...I think you get the picture.  But in reality, I have never done any of those things.  However, when I do run across something I'm brave enough to try, I am all in.

I did teach my self counted cross-stitching when I was in my early twenties.  I even worked in a craft store a couple of Saturdays a month.  I bought so much thread and fabric that I always ended up owing the owner more than I earned working all day.  I still cross stitch and really enjoy it.  I just wish it didn't take so long to see the finished project.  I'm a little impatient!

So I have now ventured out of comfort zone.  In the past year or so I have made a couple of wreaths, not the fancy ones -  mine are very simple.  I also took a large step and started painting on canvas, not pictures - words.  I started painting because...hmm, this is going to be hard to explain.  I would wake up in the morning with a word rambling around in my head.  It was not enough for me to say the word, I needed to DO something with the word.  I didn't think Steve would appreciate me painting graffiti on the house, even though it would have been nice words, so I decided to use canvas instead.

Right about now you are probably thinking I'm a nut case...no need to call the funny farm, I don't drive anymore so the streets are safe!


I've painted the words GLORY, JOY, FAITH...one of the most difficult decisions is deciding what color should go with the words.  GLORY, yellow/orange like a sunset; JOY, a deep red; FAITH, blue.
I've done some other things too. Some didn't turn out so well, so they have earned a place on my craft desk.  I like to display them: 1) when I become a famous painter I will remember my humble beginnings and 2) I will have something to throw if someone breaks in our house.

I can't believe it!  I've sat here and typed all of this (and you have sat there and read this) and it has almost nothing to do with what I really wanted to blog.  I hope you enjoyed your trip through my rambling brain.  Maybe my next blog will contain some meaningful words of wisdom.

Happy weekend!

AmyLou

Wednesday, July 11, 2012

Afflicted

With the lovely distraction of wedding plans behind us, the thoughts I had been ignoring came back into full view.  It was time to decide if I would continue chemo treatments or stop completely and let nature take it's course.  It's not a multiple choice question, I only had two options.  Growing up in the 70s watching Let's Make a Deal, I was looking for door number 3, that possibly was hiding a shiny new sports car so I could just ride off into the sunset.

I prayed that God would give me an answer as to what I should do, a very clear answer...like a billboard erected at the entrance of the hospital would have been perfect. There was no billboard, not even a Nike ad urging me to "Just Do It".  I've enjoyed these few weeks with no chemo, so there was the temptation of not subjecting my body to that misery again.  Of course, no treatment means a shorter life span.  Chemo gives me a chance of a little more earthly time, but I will be sick.  Neither option is great, but I chose chemo.  I start a new drug regimen on July 16th.

I seem to always go back and remember the beginning of my cancer (Dec 2008) when I am faced with a decision dealing with my treatment.  I wanted to give God the glory for healing me.  At that time my emphasis was more on the healing of me.  I wanted to give God the glory, but I really wanted to be healed.  The weeks passed and each doctor's report was worse than the previous and my faith began to falter.  I loved God, I worshiped Him and was longing to serve Him, so why was I being afflicted with this deadly disease.  I'm thankful that I was never angry at God, but I was confused and didn't understand the journey. "Turn my heart toward your statutes and not toward selfish gain."  Psalm 119:36

God didn't give me cancer, but He knew that I would face this hardship.  He set in motion the doctors and nurses.  He aligned our path with the path of supportive friends that encourage us, speak scripture over us and pray.  He also sprinkles our lives with folks that are only there for a moment.  I can't begin to tell you how many times a stranger has said something to me that was just what I needed to hear in that moment.

"It was good for me to be afflicted so that I might learn your decrees."  Psalm 119:71

I would love to cast cancer into the deepest ocean and never worry with it again.  But the way God has used this for His Glory is so amazing I can't get my head around it.  He has blessed me beyond measure by allowing me this time to get to know Him better!  The time I have spent in His Word has been sweet time.  Some days I am pondering the majestic power that it took to form heaven and earth and other days I am humbled knowing that His heart aches for me.  I no longer work or drive so I enjoy having a quiet time with no limits.  There is no rushing through a quiet time with God so I can go on to other things.  That is such a wonderful gift, maybe even an advantage to having cancer.

"How great is the love the Father has lavished on us that we should be called the children of God"  1 John 3:1


Rejoicing in Christ,

AmyLou

Friday, July 6, 2012

Blessed Assurance

I have recovered from the wedding, I think.  The tuxes have been returned, the flowers are wilting and we have almost finished the cakes.  For several days no one was allowed to leave our house unless they took a large plate of cake with them!

Since I was the mother of the bride, every moment of the day was special to me. The getting dressed, the hundreds of pictures, the rest time before the ceremony...and then, the ceremony.  My favorite part of the ceremony was at the beginning when the minister instructed Allie and Ryan to turn around and look at the congregation.  He prompted them to look around at the guests and to "take it all in".  After months of preparation, a week of final details and a day full of rushing around for pictures - they were able to stop and see all the folks that came to support them.  Of course, I couldn't keep my eyes off Allie and Ryan.  They were truly beaming.

As I crashed into the bed that night, I was overwhelmed with thankfulness.  I was thankful for the gift of the day.  Just being there and experiencing the day would have been enough.  But during the reception I felt a little nudge from God.  He was prompting me to look around and take it all in.  I saw Ryan, the man that has promised to love, honor and cherish my daughter for all of her days, I saw family members, young and old.  There were friends, some from years past and some new.  There were members from another family that were now a part of our family.  Then it occurred to me, these are the people that will be comforting, loving and supporting my family when I am gone.  It didn't make me sad to think of it, it actually made me very happy.  I know there are others that will also be there for Steve, Allie and Andrew, but God was giving me a glimpse, an assurance that when He calls me home they will be okay.

Isn't that the way our awesome God is?  He is almighty, creator of all good things, ruler over heaven and earth!  Then, His compassion is so deep and personal that He knows that a terminally ill wife and mom just wants to know that everything will be okay.

Love to all,

AmyLou

Saturday, June 9, 2012

Taking a Little Stroll

This past Wednesday I joined 1.2 million people in watching the college softball championship game.  A three hour delay to the start of the game did not discourage me one bit.  I was in it to "finish" it!  I believe that is the best softball game I have ever witnessed.

I played softball.  Unfortunately, it was before Title 9 so our school did not have a team.  I played park ball.   I've often wondered if I would have been good enough to make a school team.  Since we can't travel back in time, I like to think that I made the team and I was a superstar!  I was a catcher for most of my years of softball (which ended when I was 22) and I have the knees to prove it!

The park was a large part of my life.  As I stroll down memory lane I can see the park of my childhood.There were only two fields - King Field, but most of us called it the big field, and Byrd Field, which was, of course, the little field - it was a simpler time.  There was also a swimming pool and a gymnasium, but they are not part of this trip to the past.

Strangely enough, the thoughts of my years at the park, begin with my grandfather, PawPaw.  He was badly disabled by a stroke years before, but he could make it to the park and set up his lawn chair under the awning of the concession stand that was directly behind home plate.  Since I was a catcher, I was very close to him.  He couldn't form many words, but I could hear him laughing, his way of communicating.  I  knew that no matter who was sitting on the bleachers, I had a fan.

I think of Mr. Byrd "passing the hat".  During the game the announcer would say it was time to pass the hat, so Mr. Byrd, who seemed to be at least 100 years old at the time, would pass a baseball cap to collect money from the spectators.  As a young child, this activity would confuse me.  In my childish mind we paid God on Sundays by passing the plate.  I couldn't figure out who we were paying with this passing of the hat.

I can almost taste the hamburgers and fries, the best I ever tasted...no telling how many years they used the same grease!  The hands full of bubble gum bought for the team, someone passing you a coke through the hole in the dugout.

I had many different coaches over the years but a few made quite an impression on me.  Dot Cochran - she taught me the game of softball, her wit still amuses me today.  Charlene Treadaway - she probably worked us harder than any coach.  After you run a few laps for missing a ball, it becomes very important to catch it the next time.  Jim Gallman - he was the last of my little league coaches.  He taught me loyalty, playing through the pain and how to put the team first.

As I got older the "big field" got my attention.  That is where the "older" boys played.  The high school didn't have a baseball field, so all the high school games were played there.  We lived close enough to hear the PA system.  I headed down the hill as soon as I heard them giving the starting line ups.  You may think I'm a little off my rocker...but one of the best sounds to me is metal cleats walking on pavement.  I know it is cliche to say it is like music to my ears.  It wasn't because it meant boys were around, ok, maybe a little, but it mostly meant baseball was around!

...and the dirt...oh the dirt at the park was the best ever!  It was red dirt.  Any socks you wore to the park could never be worn anywhere else.  After a ballgame I would be covered in it. It just about took a scouring pad to clean it off your clothes and body.   I loved it! Yes, I just confessed my love for dirt.  But this wasn't just any dirt, it was park dirt.  It's the dirt that held the magic of childhood, the glory days of a beloved sport, the making of life long friends.

Scarlett O'Hara had a love for the dirt of Tara.  It was in her blood.  I think I have the same feeling for the red dirt of the park. It's a part of what makes me who I am.

Thanks for taking this trip with me to the park.

AmyLouLou